A year ago today, I found out I had brain cancer. So many things have happened since then. My life has been shaken up and my faith has been tested numerous times. I have to admit, most of my life, I was living in a different reality. I have learned so many things about myself and about others that have transformed my life completely, I will never be the same person I was a year ago, especially after being told I have a “terminal disease and an unknown prognosis.” My first reaction was “I got this” and acted that way for a while until I was told otherwise and found myself alone in this battle as a result of my own actions. From that moment on, I began to see things differently, I was invaded by this feeling of sadness and despair and many times I thought about giving up. During this time, I lost a few people who I thought would always be there for me (unconditionally) but I was wrong. We are all humans and many times we let our thoughts become feelings and we let those feelings control our actions before even giving those thoughts a fair trial. I have to admit, I didn’t understand this until just recently and I still catch myself sometimes reacting instead of thinking first, so I’m no one to judge. I had to die inside in order to be born again which has given me a new perspective in life that I would not trade for anything in this world. Same way I lost people I was also able to meet new wonderful people and reconnect with others, and as my faith was being tested I found the support I needed in the one and only that had always been there for me unconditionally but I had carelessly ignored…God.
Today, I celebrate being given the opportunity of a new life. I celebrate a year of the tumor not growing and I celebrate the internal healing that was very much needed. I learned that we are all “terminal” because we are all going to die one day and that everyone’s prognosis is “unknown” because we never know when is going to happen. I still have a long way to go but I’ve decided to cast my care and enjoy the journey!
I'm currently on my 9th chemotherapy cycle which means I only have 3 more to go...yay!!!
My last MRI was on March 31st and it showed that the tumor continues to be stable, no growth.
Chemo cycles have gotten a lot easier to manage, I haven't experienced any nausea this time, just feeling a little more tired than usual.
I'm happy to share that I've met two wonderful people through this site, that like me, are fighting a brain tumor. I ask that you pray for them as well.
My next MRI and doc appointment is June 2nd.
When compared to the prior studies, there appears to be a slight decrease
in the size of the nonenhancing, FLAIR/T2 hyperintense lesion centered in
the right side of the pons. Specifically, on the prior study this lesion
measured 3.5 x 3.0 cm and currently appears to measure 3.2 x 2.9 cm.This
may be due to differences in technique or angulation. The lesion extends
into the medulla. No evidence for abnormal perfusion. No hydrocephalus,
acute infarction or acute hemorrhage.
Sinuses, orbits and nasopharynx are unremarkable. No suspicious bony
Since the most recent prior study dated December 2, 2016:
1. There appears to be mild decrease in the size of the pontine lesion.
Thank you everyone for all your prayers, God is listening!
The latest MRI shows that the tumor hasn’t progressed.
I have been experiencing some twitching, mostly on my right eye but it keeps moving around my face. I’m currently taking medication for it and it has helped a little. In regards to the other symptoms they remain unchanged. As of right now, the plan is to complete the 12 cycles of chemo. I will begin my 6th cycle today 2/4/17. The side effects from Chemo have been a little less severe since the doctor prescribed an additional nausea medication and steroids during chemo days to reduce the fatigue.
I found out that the type of tumor that I have is a low-grade Diffuse Intrinsic Pontine Glioma (DIPG). I will continue with my check-up every 2 months to monitor the progress. My next check-up is March 31st.
On December 2nd, I had a follow up MRI and a doc visit. Fortunately, the tumor continues to be stable. There was some concern before the appointment because the double vision has now extended to the left side and I'm having more trouble swallowing but there is no indication that the tumor has grown. The doctor felt the need to send me for an MRI of the spine due to a new symptom that appeared about 6 weeks ago in which I feel an electric current going down my spine every time I arch my neck forward but thankfully that MRI came back clean.
The 3rd Chemo cycle I had was less severe than the prior ones and I found out it was because I had more time to recover. Instead of the regular 28 days cycle I extended it 2 more weeks due to travel. Currently, I only have side effects 2 days after I start chemo and it usually lasts 10 days after that, but feeling better towards the end of those 10 days.
I will be starting my 4th chemo cycle this Saturday, December 10th which works out so I can feel better for the holidays. My next MRI is February 3rd.
Thank you everyone for all your prayers and I wish everyone a Merry Christmas and a Happy New Year!