When compared to the prior studies, there appears to be a slight decrease
in the size of the nonenhancing, FLAIR/T2 hyperintense lesion centered in
the right side of the pons. Specifically, on the prior study this lesion
measured 3.5 x 3.0 cm and currently appears to measure 3.2 x 2.9 cm.This
may be due to differences in technique or angulation. The lesion extends
into the medulla. No evidence for abnormal perfusion. No hydrocephalus,
acute infarction or acute hemorrhage.
Sinuses, orbits and nasopharynx are unremarkable. No suspicious bony
Since the most recent prior study dated December 2, 2016:
1. There appears to be mild decrease in the size of the pontine lesion.
Thank you everyone for all your prayers, God is listening!
The latest MRI shows that the tumor hasn’t progressed.
I have been experiencing some twitching, mostly on my right eye but it keeps moving around my face. I’m currently taking medication for it and it has helped a little. In regards to the other symptoms they remain unchanged. As of right now, the plan is to complete the 12 cycles of chemo. I will begin my 6th cycle today 2/4/17. The side effects from Chemo have been a little less severe since the doctor prescribed an additional nausea medication and steroids during chemo days to reduce the fatigue.
I found out that the type of tumor that I have is a low-grade Diffuse Intrinsic Pontine Glioma (DIPG). I will continue with my check-up every 2 months to monitor the progress. My next check-up is March 31st.
On December 2nd, I had a follow up MRI and a doc visit. Fortunately, the tumor continues to be stable. There was some concern before the appointment because the double vision has now extended to the left side and I'm having more trouble swallowing but there is no indication that the tumor has grown. The doctor felt the need to send me for an MRI of the spine due to a new symptom that appeared about 6 weeks ago in which I feel an electric current going down my spine every time I arch my neck forward but thankfully that MRI came back clean.
The 3rd Chemo cycle I had was less severe than the prior ones and I found out it was because I had more time to recover. Instead of the regular 28 days cycle I extended it 2 more weeks due to travel. Currently, I only have side effects 2 days after I start chemo and it usually lasts 10 days after that, but feeling better towards the end of those 10 days.
I will be starting my 4th chemo cycle this Saturday, December 10th which works out so I can feel better for the holidays. My next MRI is February 3rd.
Thank you everyone for all your prayers and I wish everyone a Merry Christmas and a Happy New Year!
On September 30th I had another MRI done to monitor the size of the tumor and fortunately there has been no changes. The tumor is stable which means it hasn't grown.
The next day, on Oct 1st I started the second round of chemo pills. The first 2 days there's really not much going on but the from day 3 through day 12 it gets really tough. I get very nauseous and fatigued which makes it really hard just to get out of bed. As of right now, the plan is to continue taking the chemo pills for another 10 months.
I'm still taking the steroids and have been decreasing the dose very slowly to avoid any issues. I've also been getting my blood work done every Thursday and so far so good.
My next MRI and doctor visit is scheduled for December 2nd.
During the 5 days I took the Chemo pills the biggest side effect I experienced was nausea, especially towards the end of the day. The nausea started getting better about a week after I finished the pills. Some of the other side effects I still have from radiation are bad taste and ear pressure. I'm hoping they will go away soon.
I want to thank everyone who participated in the events (The Ice cream social and The Walk) these past 2 weekends. It really means a lot to me and my family to experience all the support from family, friends and strangers.
My next MRI and doc appointment is on Friday, Sept 30th and it will used to monitor the size of the tumor. The results will not change the current treatment. I was put back on 4mg of steroids after I came out of the hospital and have slowly started to dose it down 0.5mg per week. I'm hoping it will work out better this time around. I will probably start the next cycle of Chemo on Oct 1st, but I will consult with the doc when I see her on 9/30.